Headshot of Heewon Lee
Office Address

United States

Lab Address

United States



Assistant Professor; Assistant Director - Genetic Counseling Program
Genetics, Cell Biology and Development

Heewon's research examines inclusion and diversity efforts of genetic counselors in health education, how the lack of family health history impacts adoptees and donor-conceived adults' use of Direct-to-Consumer Genetic Testing (DTC-GT), the ways in which reproductive justice and critical adoption studies intersect, and genetic education in oncology. Heewon is a member of the NIH’s Inter-Society Coordinating Committee for Practitioner Education in Genomics (ISCC-PEG) DTC-GT working group, the chair of the Minnesota Genetic Counselors Association’s Justice, Equity, Diversity and Inclusion (JEDI) committee, and is a member of the National Society of Genetic Counselors.

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Selected publications

Shete, M., Kocher, M., Pratt, R., Lee, H., & Zierhut, H. (2023). Genetic counseling processes and strategies for racially and ethnically diverse populations: A systematic review. Journal of genetic counseling, 10.1002/jgc4.1773. Advance online publication. https://doi.org/10.1002/jgc4.1773

Wexler, J., Kim, A., McPhee, K., Lee, H., Blankenau, A., Cai, J., Lee, R.M. (2023). Understanding adoption as a reproductive health issue. Psychology of Women Quarterly.

Lee, H., Daulton, C., Formea, C., Gammal, R., Garber, K., Massart, M., Mills, R., Hyland, K., Weiler, T. (2022) Direct-to-Consumer Genetic Testing FAQ, https://www.genome.gov/For-Health-Professionals/Provider-Genomics-Education-Resources/Healthcare-Provider-Direct-to-Consumer-Genetic-Testing-FAQ

Messelt, A., Thomaier, L., Jewett, P. I., Lee, H., Teoh, D., Everson-Rose, S. A., ... & Vogel, R. I. (2021). Comparisons of emotional health by diagnosis among women with early stage gynecological cancers. Gynecologic oncology, 160(3), 805-810.

Lee, H., Vogel, R.I., LeRoy, B., Zierhut, H. (2020). Adult adoptees and their use of direct-to-consumer genetic testing: searching for family, searching for health. Journal of Genetic Counseling.

Zhou, X., Kim, J.R., Lee, H., Lee, R.M. (2020). Korean adoptees as parents: Intergenerationality of ethnic, racial, and adoption socialization. Family Relations.

Wu, C., Lee, S., Zhou, X., Kim, J.R., Lee, H., Lee, R.M. (2020). Hidden among the hidden: transracially adopted Korean American adults raising multiracial children. Developmental Psychology.

Vogel, R. I., Niendorf, K., Petzel, S., Lee, H., Teoh, D., Blaes, A. H., ... & Geller, M. A. (2019). A patient-centered mobile health application to motivate use of genetic counseling among women with ovarian cancer: A pilot randomized controlled trial. Gynecologic oncology, 153(1), 100-107.

Lee, H. (2018). A Genome of One. Narrative Inquiry in Bioethics, 8(2), 120-122.

Vogel, R. I., Niendorf, K., Lee, H., Petzel, S., Lee, H. Y., & Geller, M. A. (2018). A qualitative study of barriers to genetic counseling and potential for mobile technology education among women with ovarian cancer. Hereditary Cancer in Clinical Practice, 16(1), 13.

Lee, R.M, Lee, H., Kim, O. (2016). Unpacking reasons for genetic testing of adoptees. American Journal of Bioethics, 16(12), 39-40.